Jeans for Genes Day

Paediatric nursing services

Our CGD Society Clinical Nurse Specialist (CNS), Helen Braggins, will be taking annual leave from Monday the 3rd of June and will return to work on Monday, the 10th of July. 

If you are the parent of a child with CGD and require an urgent response, please call 0207 405 9200 x 5024 or email Tracy.Byrne@gosh.nhs.uk.  The team will answer queries as fast as they can.  However, these numbers are not manned in the evening, at the weekend or on bank holidays so if you have an urgent question, please phone your local team. 

Adult nursing services

General enquiries

Our CGD Society Clinical Nurse Specialist (CNS), Helen Braggins, will be taking annual leave from Monday the 3rd of June and will return to work on Monday, the 10th of July. 

If you are an adult, living in the UK, affected by CGD and have a question regarding your health management, please contact our CGD Society clinical nurse specialist (CNS), Helen Braggins:

By email: helen.braggins@gosh.nhs.uk

By telephone: 020 7405 9200 ext. 5024

If you have a specific question for Dr David Lowe, immunology consultant at the Royal Free Hospital, please contact him directly:

By email: david.lowe7@nhs.net

By telephone: 020 7830 2141

In case of emergency

If you require urgent admission to hospital or any advice regarding emergency care, please use the contact details below:

From 9am to 5pm, Monday to Friday:

Please call CNS Helen Braggins on 020 7405 9200 ext. 5024 or by mobile on 07775 794 511.

Outside of these hours:

Please call the Royal Free Hospital on 020 7794 0500 and ask directly for Dr David Lowe, Immunology Consultant at the Royal Free Hospital.

If you require emergency treatment by a non-CGD specialist, you can download 'A short guide to chronic granulomatous disorder, written by medical professionals for medical professionals' here.

Adult clinics

The adult clinics are held at the Institute for Transplantation and Immunity, Royal Free Hospital, Pond Street, London NW3 2QG. Find out how to get to the Royal Free here.

Clinics are held on a Wednesday. Dates of the clinics in 2017 are:

• 12th April
• 10th May
• 14th June
• 12th July
• 9th August
• 13th September
• 11th October
• 8th November
• 13th December

Services for X-linked CGD carrier females

Our CGD Society Clinical Nurse Specialist (CNS), Helen Braggins, will be taking annual leave from Monday the 3rd of June and will return to work on Monday, the 10th of July. 

If you are the parent of a child with CGD and require an urgent response, please call 0207 405 9200 x 5024 or email Tracy.Byrne@gosh.nhs.uk.  The team will answer queries as fast as they can.  However, these numbers are not manned in the evening, at the weekend or on bank holidays so if you have an urgent question, please phone your local team.