CGD Society's family weekend takes place at Barnett Hill, Surrey
We are looking forward to welcoming CGD Society supporters to our Family Weekend which will take place at Barnett Hill, Surrey on the 26, 27 and 28 October 2012.
The event is now fully booked for this year – we are sorry to disappoint anyone still interested in attending.
Those going along to the three-day event will hear about the latest treatments for CGD from experts in the condition.
In the wonderful setting of Barnett Hill, they'll also have the opportunity to have an enjoyable weekend together and receive information about what support is available to them from the charity.
Conference and workshops
The weekend aims to provide an informative introduction to the CGD Society and includes workshops led by four leading experts:
- Lucie Brown, Nurse Lead at Great Ormond Street Family Clinic – “Let’s talk CGD and families”. Learn about the inheritance of CGD, carrier testing, implications for future generations and family planning issues.
- Dr Paul Veys, Bone Marrow Transplant (BMT) Director at Great Ormond Street Hospital – “BMT for CGD”. * Due to a change in circumstance this presentation will now be given by Dr Robert Chiesa, BMT Fellow at Great Ormond Street Hospital.
- Dr Nigel North, Clinical Psychologist for CGD based at Salisbury District Hospital – “Improving Communication with Medics” .
- Dr John Hurst, Honorary Consultant in Respiratory Medicine at the Royal Free Hospital – “Keeping your lungs healthy in CGD”.
What’s included and covered by the CGD Society?
CGD Society members will be able to attend the conference and receive:
- Friday night dinner and accommodation
- Saturday breakfast, conference and workshops, lunch, afternoon entertainment, dinner and accommodation
- Sunday breakfast, conference and workshops and lunch
The general outline of the weekend is: Friday afternoon arrival, conferences and workshops on the Saturday and Sunday mornings and entertainment on Saturday afternoon and evening.
This year’s theme is “Halloween” so on Saturday afternoon families will be joined by some spooky entertainment. There will also be a Monster’s Ball dinner with some gruesomely delicious courses. Families will depart after lunch on Sunday.
Set in 26 acres of stunning gardens, Barnett Hill provides an intimate, private and family environment for the event.
Dr Susan Walsh, Helen Braggins and Hayley Banyard, staff from Genetic Disorders UK, are on hand to answer your queries – however small – if you are attending the weekend. Call 020 7199 3316 or email Hayley at firstname.lastname@example.org and she will make sure your question is answered.
We are looking forward to meeting you all and enjoying the weekend at Barnett Hill.