Family Conference Friday 19th to Sunday 21st October 2018

We are delighted to announce that the CGD Society’s family conference will take place at the beautiful Woodlands Park Hotel, Woodlands Lane, Cobham, Surrey KT11 3QB from Friday 19th to Sunday 21st October 2018. https://www.handpickedhotels.co.uk/woodlandspark

This will be a great opportunity to catch up with the fast-moving world of gene therapy and BMT, to meet the new CGDS team, and most importantly to meet other families and share your experiences together.  We have an excellent programme of lectures with CGD specialist clinicians but also break-out sessions where you can get feedback on specific issues.  This is a 3-yearly event so don’t miss it!

The cost of the conference will be £100 per adult. Children aged 17 and under are free. The hotel has a combination of single rooms, double rooms and family rooms. Rooms will be allocated on a first come, first served basis.

There is high demand for this event so to reserve your place please click here: https://event.gg/9629-CDGS2018/

Bookings for the 2018 Family Conference are now closed.

Agenda

Friday 19th October: Registration will open from 3pm. Children’s dinner is provided at 5:30 pm and a drinks reception and dinner for adults will start at 7pm.

Saturday 21st October: Hot and cold buffet breakfast to be served 07:00-08:30.

Morning session, guest speakers will address the following topics:

  • Management of gut and chest complications in CGD. Guest speaker: Dr David Lowe, Royal Free Hospital
  • Carrier update and management. Guest speaker: TBC
  • Advances in BMT covering haplo transplants and adult BMT.  Guest speakers: Emma Morris and Professor Andrew Gennery, Great North Children’s Hospital
  • Being a patient advocate. Guest Speaker: Davina Gray
  • Results of quality of life studies in CGD. Guest speakers: Dr Mari Campbell, Royal Free Hospital and Professor Andrew Gennery, Great North Children’s Hospital
  • Update on gene therapy. Guest speaker: Prof. Emma Morris, UCL Institute of Immunity and Transplantation

Two course adult and children’s lunch to be served 13:00-14:30

Afternoon session, delegates will be able to join several breakout sessions.

  • Families considering BMT or gene therapy. Facilitated by Professor Andrew Gennery, Great North Children’s Hospital and Prof. Emma Morris, UCL Institute of Immunity and Transplantation
  • Adults living with CGD. Facilitated by Dr David Lowe and Dr Marie Campbell, Royal Free Hospital
  • X-linked CGD carriers. Facilitated by Helen Braggins, CGD Society Specialist Nurse

Saturday evening: A Halloween themed Children’s dinner with entertainment 17:00-18:30.

A Halloween themed Adult’s dinner with entertainment 19:20-22:00

Sunday 21st October: Hot and cold buffet breakfast to be served 08:00-10:00

Skin manifestations in CGD. Guest speaker: Dr Cate Orteu, Consultant Dermatologist, Royal Free Hospital.

Getting the most from your GP. Guest speaker: Dr Claire Bonner

Drop in session with CGD specialist nurse – Helen Braggins and Consultant Dermatologist Dr Cate Orteu

Room checkout time Sunday 21st: 11am

Childcare: Childcare for under 12s will be provided throughout the conference.
Location: The Woodlands Park Hotel can be reached in the following ways:

By Car: The hotel is within 10 minutes’ drive of junctions 9 and 10 of the M25.

By Rail: Cobham & Stoke d’Abernon railway station is 5 minutes from the Hotel and we will arrange to pick you up from the station. Trains from central London leave Waterloo or Clapham Junction every 30 minutes and the journey takes 40 minutes

By Air: The hotel is 40 minutes’ drive from Heathrow Airport and 50 minutes from Gatwick airport.

Please find full details from the following link: https://www.handpickedhotels.co.uk/woodlandspark/welcome/contacts/location-map-and-directions