Transition FAQs

FAQs – Moving from children’s to adult care services – called “transition”

I’m afraid I won’t be able to remember everything I want to tell the doctor. What will help?

Don’t worry. You can talk things through with the nurses before you come into the clinic if you want to. Try taking in some notes or ask the nurse to stay with you during the consultation if this helps. It doesn’t matter if you can’t remember all the things that you’ve had wrong with you or the treatments you had when you were younger because they should be in your medical records. You can also use the CGD Patient Passport a patient healthcare record available from nurses – to record your appointments and what happened to keep everyone up to date. 

Contact our nurses to talk more about this.

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What if I don’t want my parents to come into the consulting room with me?

The nurses will encourage you to come into the clinic room on your own but your parents can come in if you invite them. Alternatively, you can call the CGD Society nurses before the clinic appointment and quietly let them know that you want to go in on your own.

Contact our nurses to talk more about this.

 

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When do I have to move from seeing a paediatrician to adult care?

This usually happens when you’re between 16 and 18 years old.

Contact our nurses to talk more about this. 

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Will I know any of the people who will look after me?

If you are going to attend London’s Royal Free Hospital, then you will usually visit the adult CGD clinic and meet the team before you have regular appointments there.

At other hospitals, your paediatric immunologist will identify which adult service you will be referred to. Our clinical nurse specialists at Great Ormond Street and the Royal Free Hospitals can help with the process and make sure your transition is smooth and seamless.

Contact our nurses to talk more about this.

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Will my parents be able to come to appointments with me or will I have to go on my own?

It’s up to you. Usually parents will go with you for however long you want them to.

Contact our nurses to talk more about this.

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