If you or your child has CGD, if you are a carrier of X-linked CGD or if
you want to know how to support a family affected by CGD, here is where
you will find the information you need.
If you, your child or someone you know has just been diagnosed with CGD,
this is where you’ll find the information you need, from coping with
the news through to advice on what to do next.
If you are a parent or carer seeking information on CGD, you can find it here.
As an adult with CGD, it is very important to take care of your
health to keep yourself as well as possible to keep infection at bay and
to keep yourself out of hospital.
As a young person with CGD, there are probably loads of questions
you'd like to know the answers to, things you maybe feel a bit
embarrassed to ask about or you simply don't know who to ask.
In October 2012, families from the UK affected by CGD met in the
leafy Surrey Hills to listen to a number of medical professionals speak
about their areas of expertise.
At the 2015 Family Conference, delegates learned from experts about the daily management of CGD, bone marrow transplantation, gene therapy and issues affecting X-linked CGD carrier females.
If you live in the UK and are considering starting a family or are
already pregnant, the CGD medical team at Great Ormond Street Hospital
for Children will provide advice and support to ensure you are fully
informed of the options available antenatally or during pregnancy.
The clinic welcomes extended family members to attend. At the clinic
you and your family will be referred to a genetic counsellor and contact
will be made with specialist midwifery services. The team may also
refer other family members for antenatal screening where appropriate.
The clinic is supported by our CGD Clinical Nurse Specialist Helen Braggins. If you require further information, please click here to contact Helen.