Affected children and adults

If you or your child has CGD, if you are a carrier of X-linked CGD or if you want to know how to support a family affected by CGD, here is where you will find the information you need.

Newly diagnosed

Newly diagnosed

If you, your child or someone you know has just been diagnosed with CGD, this is where you’ll find the information you need, from coping with the news through to advice on what to do next.

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Parents and carers

Parents and carers

If you are a parent or carer seeking information on CGD, you can find it here.

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Affected adults

Affected adults

As an adult with CGD, it is very important to take care of your health to keep yourself as well as possible to keep infection at bay and to keep yourself out of hospital.

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Children and young people

Children and young people

As a young person with CGD, there are probably loads of questions you'd like to know the answers to, things you maybe feel a bit embarrassed to ask about or you simply don't know who to ask.

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2012 Family Weekend

2012 Family Weekend

In October 2012, families from the UK affected by CGD met in the leafy Surrey Hills to listen to a number of medical professionals speak about their areas of expertise.

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2015 Family conference

2015 Family conference

At the 2015 Family Conference, delegates learned from experts about the daily management of CGD, bone marrow transplantation, gene therapy and issues affecting X-linked CGD carrier females.

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