If you would like to find out about becoming a trustee of the CGD Society, please email us.
Ocean Numan founded the CGD Society (formerly the CGD Research
Trust) in 1991 with the aim of finding a cure for the disorder that
affected his son. Ocean was Chair of the Board for 12 years. Today, he
lives in New Zealand and works as a marketing consultant. His son passed
away in 2009 aged 29.
Claire's son Max was diagnosed with X-linked CGD in 2009. Claire and her family gained information and support from the charity in the lead up to Max having a successful bone marrow transplant in 2012. Claire joined as a trustee in 2015. She works as a GP and dermatology specialty doctor in Buckinghamshire.
Geoff’s two sons were born with X-linked CGD and one has had a
successful bone marrow transplant. Geoff became a trustee in 1992, and
since that time has seen the charity change from a small parent support
group to being a leading source of information for those affected by
CGD. He is currently the technical director of a manufacturing company.
Ning's son, Johnathan, was diagnosed with X-linked CGD in 2006 and had a successful bone marrow transplant in 2013. His family received a lot of information and support from the CGD Society over the years. Ning became a trustee in 2015. He currently works as an accountant.
Jackie’s son was born with autosomal recessive CGD and had a successful bone marrow transplant in 2011 at the age of 17. Jackie joined the charity as a trustee and lay member of the research advisory panel in 2015. She currently works in her family’s business.
Andrew established the first UK CGD support group in 1986 and is a
founder member of the charity and a lay panel member on the research
advisory panel. He has a son affected by X-linked CGD and has a nephew
who had a successful bone marrow transplant in 2002. Andrew is an IT
consultant and data analyst.