If you would like to find out about becoming a trustee of the CGD Society, please email us.
Ocean Numan founded the CGD Society (formerly the CGD Research
Trust) in 1991 with the aim of finding a cure for the disorder that
affected his son. Ocean was Chair of the Board for 12 years. Today, he
lives in New Zealand and works as a marketing consultant. His son passed
away in 2009 aged 29.
David became involved with the charity in 1996 when he volunteered to prepare the annual accounts. In 2006, he became a trustee and since 2007, he has been Chair of the Board. David was previously the Director of Finance & Corporate Services for Career Connect, and is currently a trustee of a housing charity helping young people and adults.
Claire's son Max was diagnosed with X-linked CGD in 2009. Claire and her family gained information and support from the charity in the lead up to Max having a successful bone marrow transplant in 2012. Claire joined as a trustee in 2015. She works as a GP and dermatology specialty doctor in Buckinghamshire.
Geoff’s two sons were born with X-linked CGD and one has had a
successful bone marrow transplant. Geoff became a trustee in 1992, and
since that time has seen the charity change from a small parent support
group to being a leading source of information for those affected by
CGD. He is currently the technical director of a manufacturing company.
Ning's son, Johnathan, was diagnosed with X-linked CGD in 2006 and had a successful bone marrow transplant in 2013. His family received a lot of information and support from the CGD Society over the years. Ning became a trustee in 2015. He currently works as an accountant.
Jackie’s son was born with autosomal recessive CGD and had a successful bone marrow transplant in 2011 at the age of 17. Jackie joined the charity as a trustee and lay member of the research advisory panel in 2015. She currently works in her family’s business.
Alina joined the charity in 2007 after her son, who was affected by
X-linked CGD, was cured by a bone marrow transplant. Alina is currently
pursuing a career in writing have previously worked with The Federal
Reserve Bank of Boston and Chase Manhattan Bank.
Andrew established the first UK CGD support group in 1986 and is a
founder member of the charity and a lay panel member on the research
advisory panel. He has a son affected by X-linked CGD and has a nephew
who had a successful bone marrow transplant in 2002. Andrew is an IT
consultant and data analyst.