About the CGD Society

The Chronic Granulomatous Disorder Society (CGD Society) is based in the UK and was originally registered as a charity in 1991 under the name The Chronic Granulomatous Disorder Research Trust. Over the years, the charity has transformed from a small parent support group into a leading global source of information on chronic granulomatous disorder.

Jeans for Genes Day

In 1992, the charity came up with the fundraising idea of organising a Jeans for Genes Day, when school children and employees donate money to wear their jeans instead of their school uniform or work clothes. The day was a great success and has since become a national event in the fundraising calendar.

Genetic Disorders UK

In 2011, the CGD Society granted a licence to Genetic Disorders UK to manage Jeans for Genes Day each year. The CGD Society receives a licence fee from the use of the Jeans for Genes Day and Genetic Disorders UK trademarks which funds the majority of the charity's activities. The remaining income is raised through voluntary donations from members and supporters.

Our team

Our team

In order to keep its overheads to a minimum, the CGD Society does not employ any staff directly.  Instead it collaborates with Genetic Disorders UK to ensure that the charity is run professionally and at a low cost base.

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Our trustees

Our trustees

The CGD Society's trustees bring a range of expertise to the charity. Several trustees are from families affected by CGD and so offer a personal perspective during Board discussions.

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Medical advisory panel

Medical advisory panel

We are fortunate to have the support of a panel of respected medical experts with extensive experience in CGD. The members of the panel review the medical content of this website together with all of our publications to ensure that the information we provide is accurate and up-to-date.

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Research advisory panel

Research advisory panel

Our research and scientific advisory panel includes respected medical professionals with expertise in a range of specialisms from immunology and inflammation research through to gastroenterology and gene therapy. Their research has been published extensively in journals across the world and is at the forefront of CGD research.

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